Death Before Birth – Stakeholder Workshop 2018

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The wintry weather might not have been on our side, but the Death Before Birth Stakeholder Workshop on the 28th of February 2018 was a successful exchange of perspectives and insights between all the participants.

With over 30 participants, from medical doctors, midwives, and funerary industry professionals, to representatives of regulatory bodies and charities supporting people who have experienced pregnancy loss, as well as people who have themselves lost a pregnancy to miscarriage, termination, or stillbirth, the workshop brought together a variety of perspectives to discuss the complex issue of pregnancy loss.

The workshop began with a panel on experiences, where three women who have had experiences of miscarriage, termination and stillbirth eloquently told their stories, illustrating the multidimensionality and intricacy of each case. They highlighted key issues that concerned them about the process of decision- and choice-making with regards to the disposal of fetal remains and the cremation or burial of stillborn children.

The DBB research team followed with an update of the project’s progress and short introductions to the breakout sessions: one on communication, run by Jeannette Littlemore, and another on decision-making, run by Karolina Kuberska and Meera Burgess.

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The breakout session on communication focused on the metaphors people use to talk about the experience of pregnancy loss – and how looking at these metaphors can give us insights into such experiences. The session on decision-making highlighted possible conflicts of priorities involved in offering bereavement care to people who have experienced pregnancy loss.

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The final panel, “Professional support and policy: Actions for change”, was a discussion by Ruth Bender-Atik of the Miscarriage Association, Ross Jones from Sands, Brendan Day of the Federation of Burial and Cremation Authorities, and Adam Whittaker of the Human Tissue Authority. The panellists offered their reflections on issues raised in the workshop, as well as indicating possible directions for the future of bereavement care pathways following pregnancy loss.

The day provided a good opportunity for us to share our perspectives on this important issue.

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Tweets from the day: #dbbworkshop2018

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